Secretary of Health Sebelius Responds to Senate Majority Leader Harry Reid on Chronic Fatigue Syndrome (ME/CFS)
We thank Senate Majority Leader Harry Reid for his longtime work and support for the ME/CFS community, and especially for his recent efforts with the Secretary of Health to stress the serious unmet need in the ME/CFS community and the drastic implications of the...FDA Stakeholder Meeting For Chronic Fatigue Syndrome (ME/CFS) Set
The FDA Stakeholder Team began an effort in 2011 to accelerate drug development and discovery at the FDA for ME/CFS. With Chronic Fatigue Syndrome (ME/CFS) the only major disorder without have an FDA approved drug, our first goal was to get the FDA to create a...Ending My Hunger Strike with Accomplishment
Dear Friends, We, as a community, accomplished some very important things during the last few weeks, and so I am ending my hunger strike tonight. I am committed to working with our federal health agencies to bring a stronger focus and program to bear on ME/CFS for all...FDA Denial of Ampligen Exposes Out of Touch Agency; Hemispherx to Appeal
Hemispherx released a statement on Monday indicating the FDA had denied their application of Ampligen to treat Chronic Fatigue Syndrome (ME/CFS) because of a lack of ‘substantial’ proof of efficacy and (rather ominously) because they did not have enough...
Hunger Striker Decries FDA Denial of Only Medicine for Chronic Fatigue Syndrome
Ask Secretary Sebelius to start NIH Clinical Trial of Ampligen Contact: Robert Miller 703-554-5575, Courtney Miller 631-834-4681 In day 8 of his hunger strike, Chronic Fatigue Syndrome patient Robert Miller decried the FDA’s decision (announced hours ago) to...Lives Interrupted Latest Story
Megan
Randolph, United States
Former occupation: Day care worker
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