Researcher Disinterest Still Hampering ME/CFS Field Plus Avoiding Burnout, The “Real” NIH, Staying Homeless, Moving Forward
A Freedom of Information Act (FOIA) reveals that during the three grant review panels from July 2017 to April 2018, chronic fatigue syndrome (ME/CFS) researchers applied for a total of 12 grants. It was the lowest number of grant applications to the panel dating back...
Supporting the Severely Ill – The AMMES Crowdrise Project
Erica Verillo’s AMMES Crowdrise project fills such a vital need that one wonders why it hasn’t been done before. After forming a new organization (AMMES) and website, Erica’s first action was to produce a fundraiser to support the most vulnerable...
POTS Rising! Research & Advocacy Producing Breakthroughs in Neglected Disease
If you think ME/CFS and FM are behind the eight ball at the NIH, then check out postural orthostatic tachycardia syndrome (POTS), a common comorbidity. The NIH doesn’t even measure POTS funding but then how could it? POTS doesn’t even have a designated...
Three Days in May: First International Canadian ME/CFS Conference Hits the Mark
A Little History Given our vaunted insularity, many in the U.S. may not know of the role Canada and Canadian figures have played in ME/CFS. The Canadian influence has been strong and it’s growing. So far as I can tell and I’m no expert the Canadian...
Huge “All of Us” NIH Initiative Offers Possibilities for ME/CFS and Fibromyalgia
“It will be transformative.” Francis Collins Neither chronic fatigue syndrome (ME/CFS) or fibromyalgia (FM) exactly feel welcome at the NIH. Funding for both diseases is pitiful, but a program has just opened up which welcomes everyone’s participation. A top...StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
