Chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) have a long, long way to go before they get the attention and resources they deserve. It would take a heroic leap to quickly achieve what people with these diseases deserve and what the diseases themselves...
The NIH under Dr. Francis Collins has poured out major initiatives, none of which may be more meaningful for ME/CFS than the “Great Exercise Initiative” (my name). We know at the coarse level what happens during exercise but we know little about what...
Many voxel based brain studies have been done in fibromyalgia. These studies, which measure brain volume, have found reductions in gray matter (the stuff that makes up the neurons) in many brain regions including the frontal, cingulate, insular and motor cortices plus...
Fluge and Mella seem to be working at almost lightning speed. Besides managing their huge Rituximab study (and all the sub- studies within it) and the cyclophosphamide trial, they’re also carrying out large research studies. For years, of course, some...
In the end it all comes down to treatment, and that generally means treatment trials. Until a drug or approach is validated in treatment trials most doctors aren’t going to know about it, and insurance companies sure aren’t going to pay for it. In this...
The day after my brother's wedding I shot down to San Diego to meet Rachel Riggs and a doctor with ME/CFS. Rachel, who has turned into a volunteer patient
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