POTS Rising! Research & Advocacy Producing Breakthroughs in Neglected Disease
If you think ME/CFS and FM are behind the eight ball at the NIH, then check out postural orthostatic tachycardia syndrome (POTS), a common comorbidity. The NIH doesn’t even measure POTS funding but then how could it? POTS doesn’t even have a designated...
Huge “All of Us” NIH Initiative Offers Possibilities for ME/CFS and Fibromyalgia
“It will be transformative.” Francis Collins Neither chronic fatigue syndrome (ME/CFS) or fibromyalgia (FM) exactly feel welcome at the NIH. Funding for both diseases is pitiful, but a program has just opened up which welcomes everyone’s participation. A top...
Pain, Genes, Drugs and You: How Your Genetic Makeup May Be Keeping You in Pain
From Dr. Trescott’s lecture given to the Physician Partners of America: “Your Genes, Your Pain Drugs and You Or “Why Every Pain Physician Should be Testing Your Genes” When the patient says, “This doesn’t work,” or, “I’ve been too sensitive,”...
Keeping Up With Bob! Bob Naviaux’s Predicting Autism Risk Study
Many people know of Bob Naviaux’s work on chronic fatigue syndrome (ME/CFS), but long before Naviaux came to ME/CFS, he was working on autism. As you read about Naviaux’s exciting new work on autism, ask yourself whether it might be applied to ME/CFS as...
Leonard Jason Wants You! (To Tell Him About Your PEM)
Leonard Jason, ME/CFS’s foremost epidemiologist and researcher/advocate requests that you tell him what the heck happens when you engage in physical and cognitive exertion. The survey grew out of extensive discussions with the patient community during the public...StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
