The NIH under Dr. Francis Collins has poured out major initiatives, none of which may be more meaningful for ME/CFS than the “Great Exercise Initiative” (my name). We know at the coarse level what happens during exercise but we know little about what...
SPARC The NIH’s Stimulating Peripheral Activity to Relieve Conditions (SPARC) is exploring an entirely new way of treating disease. It proposes to tweak the electrical circuits (nerves) in our bodies to return people to health. These nerves (every nerve outside...
Many voxel based brain studies have been done in fibromyalgia. These studies, which measure brain volume, have found reductions in gray matter (the stuff that makes up the neurons) in many brain regions including the frontal, cingulate, insular and motor cortices plus...
Fluge and Mella seem to be working at almost lightning speed. Besides managing their huge Rituximab study (and all the sub- studies within it) and the cyclophosphamide trial, they’re also carrying out large research studies. For years, of course, some...
The low energy state, the inflammation, the oxidative stress – all the bad stuff that has shown up in ME/CFS – does it all come together in the brain? Andrew Lloyd asserted a decade ago that the symptoms in ME/CFS are all brain symptoms. If the brain...
The day after my brother's wedding I shot down to San Diego to meet Rachel Riggs and a doctor with ME/CFS. Rachel, who has turned into a volunteer patient
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