An Offering: ME/CFS Resources and Support for the COVID-19 Long Haulers
A couple of weeks ago Health Rising posted a kind of wakeup call for the COVID-19 long haulers. Borne out of decades of experience with ME/CFS, it was admittedly a pretty harsh piece – not easy to take in. An Open Letter to the COVID-19 Long Hauler Community...
The Solve ME/CFS Initiative Goes All In on First Ever Patient Registry for ME/CFS
The Fixer Often when I communicate with the Solve ME/CFS Initiative (SMCI), I end up with Allison. She seems to have her fingers in everything. She seemed to know the nuts and bolts of just about everything. I knew that Sadie Whittaker, the SMCI’s Chief...
Genetic Study Finds Mitochondrial Link to Fibromyalgia
A surprise finding suggests that a small alteration in their mitochondrial DNA may greatly increase some women's risk of getting fibromyalgia.
An Open Letter to the COVID-19 Long Hauler Community From a Person with ME/CFS
“If you look anecdotally, there is no question that there are a considerable number of individuals who have a post-viral syndrome that in many respects incapacitates them for weeks and weeks following so-called recovery. They report symptoms such as brain fog,...
Old Drug Points To New Way To Knock the Epstein-Barr Virus Down
In a surprise a 50 year old drug called Spironolactone points the way to a new generation of Epstein-Barr virus and probaby herpesvirus drugs as well.StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
