(In 2021, Amber outlined the ways we are failing those with very severe ME/CFS in a blog on Health Rising. In this blog, Trude Schei reports on the results of a rare survey that documented the situation they face in Norway.) Background In 2018, the Norwegian ME...
I’d been corresponding with Frank, James’s father, for several years. His son, a former emergency room doctor, had a very severe case of ME/CFS, and Frank had been beating the bushes to find anything that could help. Nothing, however, was working. Recently, though, I...
Whitney Dafoe’s painstaking and illuminating characterization of his descent into a severe illness, “Extremely Severe ME/CFS—A Personal Account”, was recently published in an edition of the Healthcare Journal that was devoted to severely ME/CFS...
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