The NIH RECOVER Long-COVID Clinical Trials are Set to Fail: Here’s What Should be Trialed Instead
The RECOVER Initiative focused on low risk low reward clinical trials for long COVID. Here are some possibilities that could have made a real difference. .
The US ME/CFS Clinician Coalition Treatment Recommendations
Chronic fatigue syndrome (ME/CFS) experts provide guidance on treatments for fatigue, sleep, pain, orthostatic intolerance and gut issues.
Is Fibromyalgia and Chronic Fatigue Syndrome Actually Small Fiber Polyneuropathy?
Chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) produce so many symptoms that diagnosing them can be difficult for uninformed doctors. While we know that small fiber polyneuropathy (SFPN) (or small fiber neuropathy (SFN) commonly occurs in both these diseases,...
From Infectious Disease Specialist to ME/CFS Expert: Dr. Bela Chedda Talks
Dr. Chheda’s Road to ME/CFS I met Dr. Chheda of the Center for Complex Diseases at Ron Davis’s Working Group Meetings funded by the Open Medicine Foundation. She graciously agreed to talk more about how she approaches treating ME/CFS in her practice. I was...
Death in Chronic Fatigue Syndrome (ME/CFS) – What has it Told Us? The Autopsy Files
It’s always hard to lose a loved one, but the deaths in ME/CFS seem particularly hard. They tend to be quite painful, they often take place in the midst of a non-supportive medical system, and they’re a complete mystery. With no seeming way out it’s...Lives Interrupted Latest Story
Megan
Randolph, United States
Former occupation: Day care worker
$562,824
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
