Opportunity and Danger It’s getting to crunch time. This is a time of both opportunity and a time of danger. The coronavirus situation – as tragic as it is – is nevertheless providing a unique opportunity for the chronic fatigue syndrome (ME/CFS) field. It presents...
International Awareness day is a day for many things – to push for more awareness, to celebrate the advances we are making, and to remember and honor those fighting to bring an end to ME/CFS. Remembering Tom For me it’s inevitably a day to remember Tom...
The ME/CFS community has been making valiant stabs at advocacy for quite a while. The stabbing, though, is over. That kind of ad hoc effort disappeared when the Solve ME/CFS Initiative (SMCI) hired the first full-time advocate for ME/CFS ever – Emily Taylor....
As we know, grant applications in chronic fatigue syndrome (ME/CFS) are hard to come by. Freedom of Information Requests indicate that the NIH received the lowest number of ME/CFS grant applications in memory last year – just 15. Since the NIH spends MUCH more...
ME/CFS advocacy is growing and growing. We have two groups, ME Action (join it here) and the Solve ME/CFS Initiative working pretty much in lockstep to move forward on ME/CFS. Central to both groups’ efforts are a Senate Resolution sponsored by Senator Markey...
