“We’ve Got You Now” – Historic Effort to Increase NIH Funding for ME/CFS Begins Amid Signs of Change
Opportunity and Danger It’s getting to crunch time. This is a time of both opportunity and a time of danger. The coronavirus situation – as tragic as it is – is nevertheless providing a unique opportunity for the chronic fatigue syndrome (ME/CFS) field. It presents...
Major CNN ME/CFS Article Highlights International Awareness Day
International Awareness day is a day for many things – to push for more awareness, to celebrate the advances we are making, and to remember and honor those fighting to bring an end to ME/CFS. Remembering Tom For me it’s inevitably a day to remember Tom...
The Squeaky Wheel: the SMCI’s Professional Advocate Emily Taylor on Strategically Making Noise for Chronic Fatigue Syndrome
The ME/CFS community has been making valiant stabs at advocacy for quite a while. The stabbing, though, is over. That kind of ad hoc effort disappeared when the Solve ME/CFS Initiative (SMCI) hired the first full-time advocate for ME/CFS ever – Emily Taylor....
A Grant Generation Machine: The SMCI’s 2016 Ramsay Award Winners Score
As we know, grant applications in chronic fatigue syndrome (ME/CFS) are hard to come by. Freedom of Information Requests indicate that the NIH received the lowest number of ME/CFS grant applications in memory last year – just 15. Since the NIH spends MUCH more...Lives Interrupted Latest Story
Megan
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