Dysautonomia International Conference Pt III: The Autoimmunity Revolution in POTS
Autoimmunity has become a huge issue in POTS (postural orthostatic tachycardia syndrome) and is becoming a major one in chronic fatigue syndrome (ME/CFS). The autoimmunity revolution underway in POTS – few now believe the disease doesn’t have a...
The 2018 Dysautonomia Conference Pt. II: Could You Have a Spinal Fluid Leak? An ME/CFS, POTS, FM Perspective
“Having lives derailed by intractable headaches is a tragedy, but it is a much greater tragedy when the person has an unrecognized CSF leak that could be fixed easily if only recognized. We can help them be back at work, and live life again more fully,” Ian Carroll MD...
2018 Dysautonomia International Conference I: Small Fiber Neuropathy, POTS, MCAS and Vagus Nerve Stimulation
Surprises Off all the cities I drove through on the Vegas to Florida to D.C. to Nashville to Birmingham to Tuscaloosa to St Louis, Kansas City and then on to Denver, Nashville was the biggest surprise. It’s not a big city, but cranes are everywhere lifting new,...
New Chronic Fatigue Syndrome (ME/CFS) Research Center at Harvard Fulfills Crucial Need
In May the Open Medicine Foundation announced they’d committed a major chunk of change – $1.8 million – to fund an ME/CFS Collaborative Research Center at Harvard Medical School affiliated hospitals. With the addition of the Harvard Center, chronic...
Bias, Orthodoxy and Suffering: the Lyme Disease Squeeze
A series of recent articles have laid bare the Lyme disease problem in the U.S with startling clarity. Given the disease’s remarkable spread in forty years (it was identified in Connecticut in the 1970’s), many people with mysterious fatigue and pain...StudyME
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