by Bob and Courtney Miller | Jun 22, 2016 | Advocacy, Research, Treatment
NIH is asking the ME/CFS community what future research should be done. We are submitting a request to have NIH fund clinical trials for ME/CFS starting with Ampligen, as the only medication close to approval in the FDA pipeline. If you want to add your name to this...
by Cort Johnson | Jun 20, 2016 | Treatment
It’s pretty clear that the fight/flight system is going gangbusters in ME/CFS/FM. Getting that puppy calmed down could result in less pain, better sleep, clearer thinking and less fatigue . So it might help if you could tell if something was turning your fight...
by Cort Johnson | Jun 17, 2016 | Drugs, Homepage, Treatment
She’s had chronic fatigue syndrome (ME/CFS) for twenty-eight years and has left no stone unturned in her attempts to get well. She’s traveled widely and seen some of the best ME/CFS doctors in the world. Despite being connected to the hilt in the ME/CFS,...
by Cort Johnson | Jun 8, 2016 | Sleep, Treatment
Almost 80% of ME/CFS and FM patients reported that insomnia was a major or moderate problem in Health Rising’s Sleep Survey. They also often report feeling “wired and tired”. Could the two be connected? And if they are, is there anything to be done...
by Cort Johnson | Jun 5, 2016 | Drugs, Homepage
The National Pain Report recently released the results of its fibromyalgia survey examining treatment effectiveness and other questions. Almost 1,500 people participated. (Please note that the percentages in this table are different from those in the National Pain...
by Cort Johnson | Jun 2, 2016 | Exercise, Treatment
Exercise has become a kind of universal treatment for fibromyalgia. It’s now considered a “first-line” treatment for the disease and dozens and dozens of studies (with more on the way) and millions of dollars of research funding have been devoted to...