NIH is asking the ME/CFS community what future research should be done. We are submitting a request to have NIH fund clinical trials for ME/CFS starting with Ampligen, as the only medication close to approval in the FDA pipeline. If you want to add your name to this...
Ron Davis’s electrifying talk at the #MissingMillion’s event in San Francisco indicates he believes the Open Medicine Foundation’s Severely Ill study is already opening beachheads in this disease that could explain much. Check out that and more news...
Vicky Whittemore went before “The Council” to present the Working Group’s proposal that the NIH vastly increase ME/CFS funding by creating a consortium of research/treatment centers to battle the disease. It was step one in the effort to create a new...
“Discovering Hope”, Pace-gate (the end of CBT/GET… or not?), Do You Remember You?, the #MIssing Millions, the Long Journey – check out blogs, events, a free book and the most impactful video’s ever in a celebration of International...
The “Keep Psychiatry out of the NIH Study on ME/CFS” petition has been signed by over 2,000 people and, on the face of it, it makes sense. Who would want psychiatry in one of the most important studies ever done on ME/CFS? I certainly wouldn’t. But...
(Health Rising is publishing Jorgen Jelstad’s blog with the intent to underscore the work ahead for ME/CFS as International Awareness Day approaches on May 12th. May also happens to be the month that the NIH’s Working Group for ME/CFS will apply for...
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