Mission Accomplished! (????) Feds Terminate the Federal Advisory Committee on Chronic Fatigue Syndrome (ME/CFS)
An important voice has been silenced Dr. Lucinda Bateman Without any warning the NIH, in a letter sent to current Chronic Fatigue Syndrome Advisory Committee (CFSAC) members, told them their services were no longer needed. The 15-year experiment that was CFSAC –...
The Man and the Map: Dan Moricoli on His Continuing Recovery and His Big ME/CFS/FM Map
In June, on our East Coast trip, my partner and I met up with Dan Moricoli in Palm Beach, Florida. I’d been corresponding on and off with Dan for at least ten years. In the late 2000’s, Dan had created the public CFS/Knowledge Center and the private ME/CFS Community...
“The Great Chronic Fatigue Syndrome Community Gene Study” Breaks New Ground
It’s a bold idea. Get people with chronic fatigue syndrome to contribute their 23andME or Ancestry.com data and the researchers will do the rest. Nancy Klimas’s project at the Institute for Neuroimmune Medicine at Nova Southeastern University ultimately...
Promise Fulfilled – A New Chronic Fatigue Syndrome / Fibromyalgia Practitioner Steps Forth
The most common inquiry Health Rising gets is how to find a doctor with ME/CFS/FM expertise. Chronic fatigue syndrome (ME/CFS) has never had anything remotely approaching an adequate doctor base. With the Institute of Medicine report on ME/CFS finding that fewer than...
Taking a Stand: Fibromyalgia, Orthostatic Intolerance and the Autonomic Nervous System
Numerous tilt table studies indicate that orthostatic intolerance (increased symptoms while standing) is common in fibromyalgia - placing it in a similar disease category as chronic fatigue syndrome and postural orthostatic intolerance syndrome (POTS). Sleep issues, pain, fatigue, allodynia, anxiety, irritable bowel and others could all result from the autonomic nervous system problems found in these diseases.StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
