by Cort Johnson | Sep 19, 2018 | Gut, Homepage, IVIG, Low Dose Naltrexone, Mast cell activation syndrome, POTS, Xifaxin
“The dramatic response to therapy in this patient is remarkable and could help others who suffer from POTS and MCAS.” The authors This, the fourth and last of a series of blogs featuring IVIG, and in this case other treatments, was sparked by attending the 2018...
by Cort Johnson | Sep 13, 2018 | Autoimmune, Fibromyalgia, Homepage, IVIG, Klimas, Levine, POTS, Treatment
“The bottom line is that we should rethink this whole area and encourage proper clinical trials.” Dr. Nancy Klimas This article is the last of a three-part series on IVIG which came out of my attending the 2018 Dysautonomia Conference in Nashville, Tennessee. An IVIG...
by Cort Johnson | Sep 6, 2018 | Exercise, Homepage, Mind/body, Recovery stories
In June, on our East Coast trip, my partner and I met up with Dan Moricoli in Palm Beach, Florida. I’d been corresponding on and off with Dan for at least ten years. In the late 2000’s, Dan had created the public CFS/Knowledge Center and the private ME/CFS Community...
by Cort Johnson | Aug 28, 2018 | Homepage, Supplements, Treatment
The most common inquiry Health Rising gets is how to find a doctor with ME/CFS/FM expertise. Chronic fatigue syndrome (ME/CFS) has never had anything remotely approaching an adequate doctor base. With the Institute of Medicine report on ME/CFS finding that fewer than...
by Cort Johnson | Aug 24, 2018 | Fibromyalgia and Pain, Homepage, Orthostatic intolerance, POTS
Numerous tilt table studies indicate that orthostatic intolerance (increased symptoms while standing) is common in fibromyalgia - placing it in a similar disease category as chronic fatigue syndrome and postural orthostatic intolerance syndrome (POTS). Sleep issues, pain, fatigue, allodynia, anxiety, irritable bowel and others could all result from the autonomic nervous system problems found in these diseases.
by Cort Johnson | Aug 17, 2018 | Clonidine, Conference Reports, Homepage, Ivabradine, Mast cell activation syndrome, POTS, Propanolol
Italo Biaggioni, a respected Vanderbilt researcher in the field, has co-authored 100’s of studies on dysautonomia. He was an impressive speaker, at ease and relaxed in front of the room. I felt like I was sitting in his living room. He noted that the...