Clutching our little maps we gloomily stared at the rain pelting the grey labyrinth that was the NIH. We were utterly lost and very late for our appointment with Dr. Nath, the leader of the NIH Intramural study on ME/CFS. Thankfully, we eventually found our way and...
“We’re saying that ME/CFS is a program priority now…Give us a chance to prove we’re serious – because we are.” Francis Collins No one could have expected this. The NIH was supposed to reinvigorate ME/CFS research, not watch a vital aspect of it go down the...
Jeff’s amazing craniocervical instability story indicated that a damaged brainstem can produce all the symptoms of ME/CFS/FM/POTS. He’s not the first to believe that. Michael VanElzakker, the author of the Vagus Nerve Hypothesis, has believed that for...
In 2013, Michael VanElzakker produced one of the most intriguing hypotheses to date in ME/CFS. His Vagus Nerve Hypothesis proposed that an infection/inflammation near the vagus nerve was causing it to send an unending stream of messages to the brain, telling it to...
Filling the Landscape of Unmet Needs After a successful 2017 Working Group meeting at Stanford involving dozens of top researchers, Ron Davis turned to Lucinda Bateman, and said: now you have to do the same thing with doctors. She did. With Mary Dimmock’s help,...
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