Check out Geoff’s narration The GIST The Full Blog Ah, the famous (infamous?) NIH Intramural ME/CFS study. Interrupted by the pandemic and dramatically downsized, the “Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue...
The second part of a 3-part series of blogs on the “Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome” study looks at who was in the study and how they were selected, how severely the study was truncated by the pandemic (quite...
It seems a bit odd that we haven’t heard much about amantadine (Gocovri, Symadine, and Symmetrel) in chronic fatigue syndrome (ME/CFS) or long COVID. They are, after all, the two big fatiguing diseases on the planet, and amantadine is the go-to drug for fatigue...
Filling a Gaping Hole ME/CFS organizations have been doing something different lately. Long focused purely on research, they’ve been putting more resources into treatment trials lately – suggesting they feel more confident about moving forward in that...
When people with ME/CFS say they’re not the same person they used to be, it’s not just physical illness they’re talking about it; for many the ‘mental component’; the loss of sharpness, of focus, of the ‘cognitive grace’ they...
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