The second part of a 3-part series of blogs on the “Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome” study looks at who was in the study and how they were selected, how severely the study was truncated by the pandemic (quite...
“One takeaway is It’s a disease that comes from the brain” Nancy Klimas It was one of the most expensive ME/CFS studies ever done. The brainchild of former NIH Director Francis Collins, the unusual study was designed to give the NIH solid footing to...
The Metabolism webinar is part of the ME/CFS Research Roadmap effort. The effort was put together by Dr. Koroshetz and Vicky Whittemore as a way to advance chronic fatigue syndrome (ME/CFS) research at the NIH. The Roadmap effort was conceived pre-COVID, then was...
Recovering RECOVER? They had to do something. With the money running out next year, the NIH and its RECOVER Initiative were looking at pulling the plug on over 80 clinics and kissing the $1.15 billion Congress had invested in the program goodbye – all the while...
“We posit that this assay can potentially offer an outstanding biomarker to rapidly and inexpensively diagnose ME/CFS with high accuracy. In addition, this assay may offer a remarkable opportunity for the discovery of new treatments for this debilitating...
People with chronic fatigue syndrome (ME/CFS) are not alone. Nor are people with fibromyalgia (FM) or dysautonomia or migraine. We all exist in a swirl of allied illnesses. ME/CFS experts recognize that, but researchers who typically get trapped in disease silos...