(My apologies for those who got two email blasts. I’m not sure how that happened.)
In this hour plus Q&A with Sheffield ME and Fibromyalgia Group I got to blab about hot topics in fibromyalgia research, hope for future treatments, how chronic fatigue syndrome (ME/CFS) and fibromyalgia have diverged, diagnostic issues and more.
My side of the first five minutes or so of the video had visual problems, but they clear up after that and the video is clear. Doing video’s is a work in progress for me but with my partner helping I’m learning: next steps – get the camera higher and try to look into it when I speak. 🙂
Thanks to the Sheffield group for the invitation.
Check out links to the some of the topics discussed
Neuroinflammation
- Fibromyalgia, Chronic Fatigue Syndrome, Gulf War Illness – the Widespread Neuroinflammation
Diseases - Fibromyalgia Neuroinflammation
Finding Could Open New Treatment Options
Small Fiber Neuropathy
- Eye-Opening Finding: Small Fiber Neuropath
y Found in Fibromyalgia Patients Eyes - Small Fiber Neuropathy (SFN) Fibromyalgia and ME/CFS Resource Page
Mitochondria and the Muscles
- A Workout Without Working (Much): Fibromyalgia Study Suggests Muscles Are ‘Wired and Tired’ As Well: Implications for ME/CFS
- Lactate – Is it Everywhere in Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS)?
- Major Fibromyalgia Muscle Study Points to the Mitochondria
Treatment Possibilities
- TNX-102’s Rebirth Could Help With Sleep AND Pain in Fibromyalgia
- New Anti-CGRP Migraine Drugs
Disappear Both Migraine AND Fibromyalgia For Liz - Transcranial Magnetic Stimulation (TMS) Fibromyalgia Study Produces Lasting Relief
- Microglial Inhibiting Drugs, Supplements and Botanicals to Combat Neuroinflammation
- Marijuana as Medicine for ME/CFS and FM IV: The Doctor Speaks – Treatment #I
- HEAL II: The NIH’s Big Opioid and Pain Initiative Gets More Teeth
Mindfulness Approaches
- Rewiring the Brain to Get Out of Pain: the Moskowitz Approach
- A Nurse With ME/CFS Finds Help in a Surprising Place: Christine’s DNRS Recovery Story
Great talk and again, so informative!
Thank you, as always!!
( love the pic! You are such a cutie!!)
It was very informative. I was hoping to hear something about low dose naltrexone….maybe I wasn’t paying attention
Thanks Jeanie and Wendi.
I would have loved to cover LDN but the talk was on future treatment possibilities. There is a potential even groundbreaking future LDN possibility – a different form of LDN could work better than the present form – but unfortunately, the NIH in their wisdom, did not deem Jarred Younger’s grant application was worthy of funding. Something about a low cost, easy to produce help with chronic pain didn’t appeal to them.
Health Rising does, though, have a ton of info on LDN. Check out our LDN Resource page here
https://www.healthrising.org/treating-chronic-fatigue-syndrome/drugs/low-dose-naltrexone-ldn-fibromyalgia-chronic-fatigue-syndrom/
Hey Cort!…Excellent video of your talk with the Doctor from Sheffield…You did a great job of memorizing all the terms and Doctors in their fields and the conditions associated with FM/CFS!!…You sound more informative than most scientist in the field!….Even with your lack of sleep!!…I think it’s a God send (silver lining) that despite covid-19 being a bad pandemic, there is hope that the large grant for researching the aftermath for long-haul patients will hopefully bleed over to helping FM/CFS research….
Thanks Eric.
I really think long COVID is going to help both ME/CFS and FM and I’m also excited to see what the HEAL Initiative produces 🙂
Another cool initiative for ME/CFS is the Exercise Initiative to learn about what happens to the body during exercise.
Awesome interview Cort! Thank you for all of the helpful information. I really enjoy listening to you talk.
Thanks 🙂
So enjoyable and informative to listen to you in video interview today with the Sheffield group.
Re: the researcher working on the Basel Ganglia, Could Angus MacKay from Australia be one, and Michael Van Elzakker from Harvard another? Didn’t one also find a slowed down communication happening between the brain stem and whatever it is supposed to be communicating with?
What an amazing interview, Cort, especially given your lack of sleep. Thank you for showing up for us, for your persistence, your humor and your humility. And of course, a big thank you for sharing your research and smarts with us. Our FM/ME/CFS community would be so much the poorer without you in it.
Thank you, Cort, for doing this interview. We appreciate who you are and all you continue to do for our ME/CFS and FM communities. Thank you for continuing to give us all hope in the future.
Fantastic mountain of information Cort. It was wonderful seeing the person behind all this incredible data. Nevertheless, it’s going to take me a few viewings to process all that, you did incredibly well. Any chance of more interviews? videos? or even the odd podcast? Your work is unrivaled and I cannot express my gratitude in enough.
Thanks Ally, more interviews and video’s are planned. 🙂
I really enjoyed listening to the chat. For me, I think inflammation is definitely involved – I don’t have fibromyalgia – but I believe different areas of my brain are affected by different irritants. Probably the worst, is if I really irritate my gut with certain food, then seemingly my whole brain goes into a meltdown. So I try not to!
I liked the relaxed atmosphere, the blue sky and the tree.
Hi, is there any way to watch this video without giving Facebook permission to track my activity on the Health Rising website?
Hi Deborah, you can also watch the recording on our website: https://www.sheffieldmegroup.co.uk/watch-previous-talks
that isn’t using any tracker or anything 🙂
Thanks again Cort for everything!
Elyane – Sheffield ME and Fibromyalgia Group
Thanks Cort. You covered some good areas here. Just wondering if others have any issues with lymphedema? I’m extremely histamine intolerant as well. Am I unique here or are others noting these symptoms. They seem amplified after my Covid vaccines.
Brilliant! Thanks Cort.
Enjoy J-tree – one of my favorite places.
Interesting ideas about lymph drainage from the brain. Particularly since the medical world didn’t even believe that the brain had a lymph system until recently.
That ties in well with energy production problems, anaerobic metabolism and Younger’s lactic acid findings etc.